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a better night's sleep-finally!
New sleep clinic diagnoses teen's chronic sleepiness

by Sarah Padilla

Rama Maganti, MD, in front of two of the six patient rooms in the new Barrow/Arete Sleep
Center.

Like most teens, Austin Wales was never a big fan of getting out of bed in the morning. But unlike his friends, who managed to perk up as the day wore on, Wales preferred crawling back under the covers to doing most things.

It wasn’t until his senior year of high school, after years of chronic sleepiness, other unusual symptoms and a slew of doctors visits and medical
tests, that Wales and his family finally learned that he didn’t just need a little more shut eye—Wales had severe sleep apnea and narcolepsy.

For Wales and the estimated hundreds of thousands of other Arizonans with sleep disorders, Barrow now offers a new resource for a better night’s sleep. In July, the institute opened the Barrow/ Areté Sleep Center, a jointly-operated sleep diagnostic program that treats patients of all ages.

While there are other sleep centers in the Valley, the expertise that co-medical directors Rama Maganti, MD, and Maria Martinez, MD, bring to Barrow’s program makes it unique.





Pulmonologist and neurologist combine their sleep expertise

Dr. Maganti is a neurologist and board- certified sleep specialist, a fact that is in itself unique, as most sleep specialists are pulmonologists. And yet, many patients with complex neurological disorders such as epilepsy and Parkinson’s disease also have sleep problems. Dr. Maganti was hired two years ago to help fill that void, and he’s currently the only Barrow neurologist who practices sleep medicine.

Dr. Martinez, on the other hand, is a pediatric pulmonologist and is believed to be the only pediatric board-certified sleep specialist in the state. Dr. Martinez came to St. Joseph’s in 2004 from North Carolina. When she realized that Arizona didn’t have adequate resources to treat children with sleep issues, she began pushing to form a center.

The result is a comprehensive program that can treat patients of all ages and with a variety of conditions.

“We can treat patients with garden-variety sleep disorders, but we also have an expertise in more complex pediatric and neurological conditions that is hard to find,” says Dr. Maganti.

Left untreated, sleep disorders can
lead to an increased risk of heart
disease, stroke and mood disorders.
In children, sleep disorders can lead
to learning and behavioral problems.


Passing out 30 times a day


Wales falls into the more complex category. His long road toward a diagnosis began as a toddler, when he briefly passed out one day after playing in the warm Arizona sun. His family chalked it up to the heat, but as he grew older, it began to happen more frequently. By the time he reached high school, Wales would sometimes pass out as many as 30 times a day.

“As it got worse, we started thinking that maybe there was something more to this than just the heat,” says his mother, Sue Wales. “We went to cardiologists and endocrinologists, but nobody could find anything wrong with him.”

Finally, a scan revealed a venous malformation in Wales’ brain, and his physician sent him to Barrow. While the follow-up appointment eventually led to the discovery of a large mass in his sphenoid sinus cavity, it also led to another discovery.

“The neurologist overheard Austin snoring in the waiting room and told us that Austin had the worst sleep apnea that he had ever heard,” says Mrs. Wales.“He told us to get him into a sleep clinic right away.”

Wales eventually underwent two surgeries to remove the mass, which was benign but which may have been causing pressure on the blood vessels in his brain. He also started seeing Dr. Maganti and underwent an outpatient sleep study, which showed he experienced more than 50 events an hour. People with normal sleep patterns usually experience less than 15.

“The neurologist overheard Austin snoringin the
waiting room, and he told us that Austin had the
worst sleep apnea he had ever heard.”
- Sue Wales

70 million Americans affected

Dr. Maganti’s diagnosis was narcolepsy and severe sleep apnea. After starting medication and treatment with a CPAP machine (a respiratory ventilation system used to treat sleep apnea), Wales’ fainting spells, which were actually bouts of narcolepsy, disappeared.

Wales is one of an estimated 70 million Americans who suffer from a sleep disorder. While there are multiple types of sleep disorders, the most common include insomnia, sleep apnea, restless leg syndrome and narcolepsy. Left untreated, sleep disorders cn lead to an increase in heart disease, stroke and mood disorders, and a loss of productivity. In children, who most often suffer from obstructive sleep apnea, sleep disorders can lead to learning disorders and behavioral problems.

However, the diagnosis of a sleep disorder can sometimes be a long process.

“Most people with sleep disorders don’t seek help right away,” says Dr. Maganti. “When they do, it’s at the urging of a family member or because it’s affecting their daily functioning.”

And like Wales, many patients eventually will undergo an overnight stay at a sleep lab. Barrow’s lab is off campus, located on McDowell Road across from Good Samaritan Hospital. While Drs. Maganti and Martinez provide the medical direction, the lab is operated by A reté Sleep Health. Patients as young as three years old can be seen at the lab, making it one of the most comprehensive sites in the state.

Left untreated, sleep disorders can lead to an increased risk of heart disease, stroke and mood disorders. In children, sleep disorders can lead to learning and behavioral problems.

Designed to be quiet and comfortable, the lab houses six private beds. During their stay, patients are hooked up to various wires and monitors, which measure such indicators as oxygen saturation, brain waves and leg jerks.

Pediatric pulmonologist Maria
Martinez, MD, co-directs the
Barrow/Areté Sleep Center with
Rama Maganti, MD.

Sleep research and education

In addition to comprehensive patient care, the Barrow center is also involved in education and research activities. Dr. Maganti has presented to his colleagues at the annual Barrow Symposium. Barrow is in the process of integrating sleep medicine as a part of the neurology residency curriculum, and plans are in the works to establish a sleep medicine fellowship.

The center performs both clinical and basic science research. Various clinical research studies look at ways in which sleep varies among different patient populations. Over time, Dr. Maganti believes the center will participate in clinical drug trials.

Drs. Maganti and Martinez hope to see the Barrow/ Areté Sleep Center become a multidisciplinary and comprehensive sleep program, which would include integrating additional sleep specialists from psychiatry and pulmonology. It would also include incorporating more community awareness and education, something both doctors agree could lead to more effective treatment—and fewer cases like Wales’.

While Wales will never know for sure how much the sphenoid sinus mass affected his condition, he does know that for the first time in his life he actually feels well rested. The timing couldn’t be better since Wales just started his freshman year at Scottsdale Community College. And while he’s sure to pull a few all-nighters over the coming years, at least now he’ll know why he can’t keep his eyes open the next day.