Barrow Neurological Institute of St. Joseph's Hospital and Medical Center Phoenix, Arizona
The following website links are provided for your convenience only. Barrow Neurological Institute neither endorses nor is responsible for the content in any way.
Epilepsy Foundation of America
www.epilepsyfoundation.org
Provides information and resources for individuals affected by epilepsy.
For more information contact:
8301 Professional Place
Landover, MD 20785
800-EFA-1000
Tel: 301-459-3700
Epilepsy Foundation of Arizona
www.epilepsyfoundation.org/arizona
This nonprofit organization is dedicated to the prevention and control of seizure disorders. It is committed to improving the lives of people affected by epilepsy through information, support group programs, and advocacy.
For more information contact:
Epilepsy Foundation of Arizona
PO Box 25084
Phoenix, AZ 85002
Tel: (602) 406-3581; (520) 429-6201; or toll-free (888) 768-2690
Email: mmaclei@chw.edu
Epilepsy Resource Center
www.healingwell.com/epilepsy
A clearinghouse for epilepsy information. Find the Parent's Guide, FAQs, links to message boards and. The site has links for women with epilepsy and advice about leisure activities for epileptics.
Epilepsy.com
www.epilepsy.com
Comprehensive website encompassing research, current congressional activities, chat rooms and basic information. Has a children's area with facts, games, a storybook and teen chat room. Basic information also available for first-aid, safe living tips, medication information, and frequently asked questions.
The International League Against Epilepsy (ILAE)
www.ilae-epilepsy.org
ILAE, which was founded by a group of international neurologists in Budapest in 1909, disseminates knowledge about epilepsy. It promotes research, education and training, services and care for patients, especially through prevention, diagnosis, and treatment.
International Bureau for Epilepsy (IBE)
www.ibe-epilepsy.org
IBE was established in 1961 by laypersons and professionals interested in the medical and nonmedical aspects of epilepsy. The IBE addresses social problems, including education, employment, insurance, driving-license restrictions, and public awareness. The bureau, which works closely with the ILAE, is funded through membership dues and by financial support from other contributors.
Tuberous Sclerosis Alliance
www.tsalliance.org
International Rett Syndrome Association (IRSA)
www.rettsyndrome.org
Rett Syndrome Research Foundation (RSRF)
www.rsrf.org
Children's Tumor Foundation (CTF, formerly National Neurofibromatosis Foundation)
www.ctf.org
