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The staff and physicians of the Muhammad Ali Parkinson Center have assembed the list of links below to aid those suffering from Parkinson's disease in gathering the knowledge and acquiring the services they need to successfully manage the disease. (Please note: This list of websites may be of interest or information to you. These websites are independent of Catholic Healthcare West (CHW) and Barrow Neurological Institute. As such, Barrow and CHW do not endorse or sponsor any of these sites, nor do we vouch for the any of the information contained within these sites.)
Administration on Aging
A comprehensive overview of a wide variety of topics, programs and services related to aging. Whether you are an older individual, a caregiver, a community service provider, a researcher, or a student.
America Parkinson Disease Association - West
Information on young onset PD, support groups, physicians, news, and the latest research regarding Parkinson's disease.
American Association of Retired Persons (AARP)
Information for older adults that covers subjects such as wellness, health care coverage, and educational materials.
Area Agency on Aging
Information regarding all aspects of senior care, such as: employment, senior centers, congregate meals, adult day services, volunteer opportunities, chore services, home health, emergency assistance, personal care services, respite care, senior housing, elder abuse programs, and ombudsman services.
Arizona Attorney General's Office
Printable copies of Arizona's "Life Care Planning" documents.
Arizona Bridge to Independent Living
Information & referral, peer support, home modifications, independent living skills instruction, personal and home health assistance, Americans with Disabilities Act training and compliance surveys, consumer advocacy, and a variety of other community integration and transitional services.
Arizona Chapter of the National Parkinson Foundation
Committed to supporting research, education and services as they impact the Parkinson community—the organization strives to increase active membership by encouraging an awareness of local, national, and worldwide research while aiding and affirming support groups. The non profit organization supports educational programs and effective networking and at the same time is active in raising sufficient funds to unify the Parkinson community by improving communication between groups. The AZNPF was established in 1995 and has a growing number of members: care receivers, care givers, friends and just plain interested persons. The all volunteer board of directors sponsors a variety of activities and events, including an annual meeting and monthly support groups, where members learn the latest news in research and political activities and exchange views with others.
Arizona Governor's Council on Aging
Information about current and future government programs for seniors.
Arizona Health Care Association
Consumer information on skilled nursing facility care and assisted living, government financial assistance, long-term care insurance, and other pertinent information necessary to make knowledgeable decisions regarding long-term health care.
Assistive Technology in Arizona
Promotes increased access to assistive technology (AT) devices and services for individuals with disabilities and their families while facilitating the development of a consumer-responsive AT service delivery system. Program staff work with consumers, service providers, state agencies, private industry, legislators, and other interested individuals to facilitate the development of a statewide system to provide AT services.
Baehr Challenge
The Baehr Challenge creates awareness regarding fitness as a treatment for Parkinson's disease while funding scientific research for better treatments and a cure.
California Parkinson's Group
The CPG is a loosely knit organization of Parkinson's patients, their spouses, families and supportive friends. Initially conceived as a meeting ground for people with early onset Parkinson's Disease, it provides a forum for ideas, camaraderie and activism for patients within the pre-retirement demographic. Their mission is to foster support and collaboration among friends and families with young onset Parkinson's Disease through dialogue, education and involvement in the medical research community.
Capital Area Parkinson's Society
The Capital Area Parkinson's Society (CAPS) was founded in 1984 to address the needs of people with Parkinson's disease, their families, friends and carepartners. CAPS is a non-profit organization, serving the Central Texas community. Membership in CAPS is open to anyone with an interest in Parkinson's disease.
Caregiving Bulletin
Operates message boards and Q & A forums relating to tips and techniques used by different caregivers.
Celebrity Fight Night
Information regarding Celebrity Fight Night, a charity event that benefits the MAPC and the Movement Disorders Clinic at Barrow Neurological Institute.
Community Information and Referral
A database of over 2000 agencies includes government and private nonprofit organizations, self-help groups, civic clubs, professional associations, and much more.
Department of Veterans Affairs
Information regarding the broad spectrum of medical, surgical, and rehabilitative care the VA offers. Their goal is to share information about these benefits and services to make it as east as possible for you to receive the care you need.
ElderWeb
Award-winning site designed to be a research hub for both professionals and family members looking for information on eldercare and long term care, and includes links to information on legal, financial, medical, and housing issues, as well as policy, research, and statistics.
Family Caregiver Alliance Website
A public voice for caregivers. Illuminating the daily challenges they face. Offering them with assistance they so desperately need and deserve through education, services, research and advocacy.
Focus on a Cure Foundation for Parkinson's
Tools, resources and education that members of the Parkinson's community need to better understand this disease and help in the fight to find a cure.
Foundation for Senior Living
Information regarding technical assistance provided through the Foundation, including employment and volunteer opportunities, adult day service, adult home care and respite services.
Fountain Hills Parkinson Support Group
A non-profit organization dedicated to promoting awareness of Parkinson's disease and to providing information and support to all members. The group reaches out to the community through its Adopt-a-Street program and other volunteer activities. Group meetings are held on the first Wednesday of each month at the Fountain Hills Community Center.
Hollyrod Foundation
Located in Southern California, the organization provides support to people with Parkinson disease and their families.
Home Modification Resource Center
Focuses on home modifications to accommodate lifestyle changes and increase comfort. Includes a listing of agencies that can help offset the cost of home modification.
Homecare Online National Association of Home Care (NAHC)
The premier clearinghouse for home care and hospice information. NAHC receives requests from members, other health care providers, government officials, journalists, scholars, and industry analysts for the latest facts and figures on home care and hospice. NAHC compiles and reports the data of greatest interest to its members for use in policy analysis and educational campaigns to policymakers and the general public.
Housing & Mortgages for People with Disabilities
Guide for individuals living with disabilities and their family members who are in the process of buying a home. Learn more about five important steps in buying a home and financial assistance programs that are available for disabled home buyers.
Jackson White, Attorneys at Law
Legal information and resources on long-term care needs.
Lewy Body Dementia Association
Information for patients with Lewy Body Dementia and their Caregivers. On this site you will find Patient Support, Family Support, Caregiver Support, and Education and Research.
Massage Therapy at Juniper House
Information regarding the benefits of massage for people with Parkinson's disease. The site also contains information on making appointments through the massage clinic at the MAPC.
Medicare & You
Learn about the different options for health plans, comparison shop, and find the plan that will work best for you.
Mesa Senior Services, Inc.
A host of programs, services and activities of interest to senior adults in Mesa, East Mesa and Apache Junction.
Michael J. Fox Foundation
Regularly updated information regarding the latest research into Parkinson's disease.
Morris, Hall & Kinghorn, P.L.L.C.
Legal information and resources on long-term care needs.
Muhammad Ali Center
Official website for the Muhammad Ali Center in Louisville, Kentucky. The Center will help to promote respect, hope, and understanding, and to inspire adults and children everywhere to be as great as they can be.
National Center for Complementary and Alternative Medicine
General information about complementary and alternative medicine (CAM) and the National Center for Complementary and Alternative Medicine (NCCAM). It is designed to give you a quick overview of NCCAM efforts to advance CAM research.
National Family Caregiver Association
Through its education, support, public awareness and advocacy services, NFCA strives to minimize the disparity between a caregiver's quality of life and that of mainstream Americans.
National Institutes of Health
Information on various health topics. A database of research studies throughout the country. Publications on new health findings and information on medications.
National Organization of Rare Disorders
A range of information and resources on rare disorders, including a newsletter (the Orphan Disease Update), a searchable Rare Disease Database, the Organizational Database, and the Orphan Drug Designation Database.
National Parkinson Foundation, Inc.
Information and new developments in Parkinson's research and treatment. Includes articles from previous newsletters, nationwide support groups' listings, and on-line publications. A special feature is "Ask the Doctor", where you can post questions to and receive responses from physicians associated with the NPF.
National Senior Law Center
The NSCLC staff works with legal services offices and senior organizations throughout the U.S. to provide quality advice and service. NSCLC staff attorneys serve as counsel in litigation, provide expert analysis on federal policy, train advocates to better represent their clients and educate through our publications.
Northwest Parkinson's Foundation
Information on community outreach, awareness, and education in this region of the United States.
Parkinson Disease Clinical Trials
Information and links to PD research going on throughout the country. The sites listed are seeking participants for clinical trials.
Parkinson Disease Foundation
Information relating to education, research and advocacy for Parkinson's disease.
Parkinson's Action Network
Contacts to help you or somebody you know become an advocate for Parkinson's disease.
Parkinson's Patient Support Group
A non-profit organization that has been serving the community of Parkinson's patients, care-givers and their friends and families since 1981. Originally organized to serve the San Mateo Peninsula and referred to as the Peninsula Parkinson's Support Groups, they have since expanded their service area to serve the communities of the San Francisco Bay Area and beyond, such that they have found it necessary to change their name to Parkinson's Patients Support Groups, Inc. PPSG supports the Parkinson's community by sharing information about the latest treatments, events, and legislation regarding Parkinson's disease. They also give recognition to care-givers and volunteers with annual luncheons acknowledging their contributions. They contribute to the success of local support groups by helping to put patients and care-givers in touch with local support groups.
PD Plan 4 Life
PDPlan4life was created by two women who have PD. Their site revolves around an informative personal journal. The site contains tips for living well with Parkinson's while waiting for the cure.
PhRMA
Directory of patient assistance programs from pharmaceutical companies that ensures their medicines are made available to those who can't afford to purchase them. Contains a listing of 1-(800) numbers to call for each medications assistance program.
Poles for Mobility Balance and Walking
Poles help people to achieve, maintain and often regain mobility. This website has information about poles, how to learn to use them correctly and includes benefits, tutorials and resources.
Rasheda Ali
Showcase of Rasheda Ali's work to help families and children understand Parkinson's disease.
Senior Law Home Page
Senior citizens, their families, attorneys, social workers, and financial planners, can access information about Elder Law, Medicare, Medicaid, estate planning, trusts and the rights of the elderly and disabled.
Tai Chi for PD
Don Fiore is an instructor on Tai Chi and has done extensive work with Parkinson's patients. The site offers videos and dvd's for sale based off his work with the Parkinson's community.
The National Hospice & Palliative Care Organization
This organization aims to improve end-of-life care and expand access to hospice care with the goal of profoundly enhancing quality of life for terminally ill Americans and their loved ones.
The Official PWP Dumpster Gang Hideout
A site where people with Parkinson's (PWP) can share stories and read an online magazine. Also contains chat rooms and bulletin boards.
The Parkinson Alliance
Information regarding the grass roots efforts to raise funding for Parkinson's research.
Today's Caregiver Magazine
Information on organizations and agencies that assist caregivers in various areas of the country. This site also contains excerpts from books that are helpful for caregivers as well as bulletin boards. Visitors can "Ask Dr. Caregiver", voice their concerns or get help with problems they might be having.
WebMD
Information designed to help physicians, patients and those in between navigate the complexity of the healthcare system.
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